Wednesday, February 9, 2011

2-9

Phew...that corner took a while to turn but here we are.  Both of our precious babies have stepped up their games and we couldn't be more proud of them!

Penelope is doing exceptionally well on her high flow canula (the clear tube under her nose) and is very much enjoying her freedom to move around.  Earlier today we found her trying to crawl to the top of her incubator!  She's got her energy back and has been showing us with little fits and lots of crying.  The most beautiful sound to our ears after a month of not hearing anything from her. Her color is looking better and they'll be checking her bilirubin levels in the morning.  The doctor here decided to hold off on the ultrasound for her back until she's bigger.  The reason is that for this kind of ultrasound she would have to be taken down to the machine and having just been extubated she's still a little too sensitive for that.  Obviously if there is a problem it's not impeding her mobility at all (see aforementioned crawling) and when the doctor examined her she didn't seem to have any malformations internally with her spine.  So, today has been quiet.  Except for more crying...welcome crying.

Lydia made history today.  She took her first full feeding form a bottle!!!  I think it's her daddy's excellent bottle feeding skills, but she claims its because she's a big girl.  It was a whole 31 ccs which is just over 1 oz.  I think that would be equivalent to me eating a 2 lb hamburger (don't check my math..either it's way off, or you'll know how much I weigh).  We expect she'll tip 4 lbs tonight.  She was put on baby prevacid for her reflux and it seems to be helping a bit. You'd have heartburn too if you ate a 2 lb hamburger!  She also has been trying to escape her incubator more often.  I think Penny actually picked it up from her.  Multiple times we've found Lydia with her hands on the portholes of the bed. I think we might be in trouble.

As for us, we're doing very well.  Today was my last day to work for this school year.  It's a strange feeling.  It was especially strange that it ended up being a half day because of the snow.  Just one more little bonus blessing from the Lord.  I wish I could have held on to my gratitude to the school board a little longer, but when trying to drop off my paperwork for leave time, I had a little "run in" at the board.  Nothing major, but I did get snappy with the poor lady who had to deal with me.  Apparently it's policy that the doctor is supposed to fill out the paperwork.  Nowhere on the paper did it say that.  When the lady asked me who had changed the leave start date, I told her honestly that I did.  She told me that I couldn't write on the form myself and that I had to take another form and have the doctor fill it out again.  I can't imagine what my face looked like.  She told me that it's not written on the paper but I'm suppose to know what the policy is.  I was very tempted to just say, "oh, I'm sorry I was wrong before.  The doctor wrote that" I mean what were they going to do, have the handwriting analyzed?!  But no, the Holy Spirit tied my tongue and all I said was "The doctor signed what I filled out to say that they approve what I had written.  Doctors do it all the time.  They're too busy taking care of my 2 sick babies to fill out paperwork.  Now, I understand that that is the policy and that you can't bend the rules for me, but I think it's a ridiculous policy"....man was I mad!  When I called to vent about it to my mom she informed me that life as a parent is filled with fighting the system on behalf of your children.  Maybe next time I can do it without getting so snippy.  Lady at the board, if you're reading this, I apologize.  But I still think the policy is ridiculous.
Specific Prayer
  • Penelope to keep doing so exceptionally well
  • Penelope's hernia to heal on it's own and for it not to be painful for her
  • Penelope's little back issue to be nothing
  • Lydia's heartburn to go away
  • Lydia to continue taking full feeds from the bottle or from Bethany
Mommy Penelope bonding time

Lydia and Panda Pal bonding time (she actually held it's hand...paw...whatever)

Penny and her glowworm doll...used for size comparison

Lydia with her glowworm

Lydia trying to sneak out

Lydia and her MahMah

Lydia with her Daddy and her YehYeh




 Penny's little cry is hoarse after the extubation but it's music to our ears!

"I've got my eye on you" -Penny

"I'm so excited...and I just can't hide it" -Penny

Penny's pretty eyes

8 comments:

  1. Praise the Lord for those sweet miracle babies and their amazing,patient loving parents.And getting snippy is ok when fighting for time with your daughters.Bethany I think of you all all the time and keep up with you regularly,you're in my prayers.

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  2. When I turned on Penny's video...he came running. I explained that it was Jonathan & Bethany's baby girl and then he says, "When I was a baby I had a owie and had to go to the hospital." Guess he wants to identify with the girls, ha! But he remembered they were your babies!

    So, Bethany are you saying in your post that you are taking a leave of absence for the remainder of the school year?

    Love the pics! Love that you are having some happy moments!

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  3. The girls look fabulous....Praise God! I am so happy to read all your good news. Bethany, I'm afraid your mom is right. There are so many injustices out there..some you let go and some you will choose to fight for your children's best interest. Penny and Lidia are so blessed to have such a loving family. Hope you are all staying safe in this storm. And I really like that you are posting a specific prayer list.

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  4. Praise God from whom all blessings flow!

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  5. great pictures and great news today Bethany. So happy for you and J!

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  6. I've learned that there is only one way to deal with MCS at the district level. EXTREME PATIENCE and mental immobility. Meaning that you know what you need and want and you have to stick to that with every fiber of your being. Oh yeah also you have to get a signed photocopy of everything you ever drop off to prove that it actually happended. Trees just must suffer. I'll be praying for your success at navigating/managing the system.

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  7. What a great day! I love the pictures - especially the one of Lydia trying to escape - that hilarious!

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  8. i love reading all about these precious little girls and the pictures are worth thousands of words! You are doing a great job and we continue to keep all of you in our prayers! love and hugs to all! Those grandparents photos are great! Iknow they are just bursting from the heart with love! Elaine

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