Penny's blood sugars continued to be stable all day with only a few minor desats. Lydia, on the other hand, had a few major desats that had her nurse very worried! It's most likely caused by her still open ductus arteriosis but they will address that at Lebhoneur. Most likely, one or both of the girls will need a ductus ligation surgery which apparently is relatively minor and done at the bedside. I'm not sure how a heart surgery can be minor...but apparently it is.
On a more emotional note, I got an email from another friend who tends to get hymns stuck in her head. The one that was stuck for the past few days has been "Leaning on the Everlasting Arms." I was reading the e-mail as Jonathan and I drove to Lydia this evening and read the lyrics out loud. By the time I got through the first verse we were both crying. Just so grateful to have His everlasting arms to lean on. I know how much of a comfort it is to me to just put my head on Jonathan's shoulder when things are looking gloomy and they all seem a little less gloomy. As wonderful as Jonathan's arms are for me, sometimes they fall asleep and I have to move. Or sometimes they're miles and miles away. This sweet song reminds me that there are always arms that will never fall asleep and will never leave. They're always there. What a precious gift. Here are the lyrics.
- What a fellowship, what a joy divine,
Leaning on the everlasting arms;
What a blessedness, what a peace is mine,
Leaning on the everlasting arms.- Refrain:
Leaning, leaning, safe and secure from all alarms;
Leaning, leaning, leaning on the everlasting arms.
- Refrain:
- Oh, how sweet to walk in this pilgrim way,
Leaning on the everlasting arms;
Oh, how bright the path grows from day to day,
Leaning on the everlasting arms. - What have I to dread, what have I to fear,
Leaning on the everlasting arms?
I have blessed peace with my Lord so near,
Leaning on the everlasting arms.
Please join us in celebrating more and more of the miracles we're seeing everyday. It's such a blessing to us to share this with you.
OH! How could I forget?!?! I got to do kangaroo care with Penny today! I really didn't expect to but when we got by from having back from having breakfast our nurse asked if we wanted to hold her and I think my head almost popped off my head I was nodding it so hard! Our nurse was male (still is) so he had to round up some female support and they got us all set up. It was so sweet. She was a little fussy during the moving and transition time, but once she was on my chest she settled right down and her numbers got even and stayed even form the whole time. We were only able to do 30 minutes to see how she would do, but she did so well that I'm hoping we can increase the time soon! Again, what a precious gift.
Love,
The Chus
Great news and what a great day! She looks very content and comfortable resting on you I am sure it made her day as well! Keep up the great work, you are both doing such a wonderful job!
ReplyDelete-Shelly Harris Russnak
I look forward to reading you and Jonathan's blogs each day, they are truly heart warming. I pray each day that your beautiful girls stay healthy and grow stronger with every day that passes. God bless!
ReplyDeleteHow wonderful!! I’m so happy for all of you. I’ve gotten in the habit of stopping by here every evening to read your updates and remind myself to pray for your family. May God continue to bless you all and may His sweet Spirit be upon your family.
ReplyDeleteTess
"Safe and secure from all ALARMS" has a different ring to it now, doesn't it?!
ReplyDeleteHooray for holding Penny!